Traveling with a Feeding Tube
Practice
Tube feeding in public can be intimidating, but it gets easier with time. The first couple of times can feel stressful, but don’t give up. Practicing is key!
If you are worried about the comments from other adults and children, focus on educating them in a simple way. Saying something simple like “This is my child’s feeding tube because they need a little extra help eating.” is a good start. Most comments and stares come from curiosity and are not intended to be rude.
Plan
Before heading out, plan on where and when you are going to feed. Anywhere people are allowed to eat and drink should be acceptable for tube feedings. Make sure you consider your child’s feelings. Older children may feel uncomfortable lifting their shirts while feeding in public. If so, look for a breastfeeding room, medical area, or a more private space.
Note: Don’t feed in the bathroom. You don’t eat in the bathroom; therefore, avoid tube feeding in the bathroom. If someone ever pressures you to move to the bathroom, kindly remind them that individuals with disabilities have the right to have their medical needs accommodated in public places. This is according to the Americans with Dishabilles Act.
Checklist & Emergency Kit
Making a checklist of all the supplies you need to perform a feed in public is a simple step that will make your life easier. Also, making an emergency kit for potential issues is strongly encouraged.
What to include in an Emergency Kit?
Syringe
Tape
Tube or button replacement kit (tube, lube, tape, syringe)
Extension sets
Feeding bags
Tube or button replacement kit (tube, lube, tape, syringe)
Formula, breast milk, or a blenderized meal
A day’s worth of medications
60 mL syringe and smaller syringes that fit into the tube
1 change of clothing and diapers (if applicable)
Stoma care supplies, medical tape, and wipes
Emergency contact information
Emergency medical forms
List of medications
Feeding schedule